Living July 11, 2023

Woman with spinal cord injury shares pregnancy journey to bring visibility to people in wheelchairs: 'Never say never'

WATCH: Influencer with spinal cord injury shares pregnancy journey online

A woman with a spinal cord injury who has been a wheelchair user her entire life, is sharing her joy with the world about getting pregnant.

Alyssa Higgins, 30, from Rockland County, New York, who is a disability advocate, shared the sweet news on Instagram in October with a photoshoot surprising her husband, Jimmy Higgins.

"I had no idea what to say," Jimmy, 30, told "Good Morning America." "I just turned around and my jaw dropped."

The news came as a shock for the couple who had been trying to have a baby, but weren't sure if it was possible due to her injury and health.

"I didn't even know if I could get pregnant with a spinal cord injury, but also because I have one ovary," Alyssa told "GMA." "The ovary thing made it get into my head more when I thought I couldn't get pregnant. But it was always a possible thing."

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Alyssa suffered a spinal cord injury at birth due to birth complications. She was placed in an incubator and couldn't breathe on her own. It wasn't until she was 18 months old that she started to gain movement in her fingers.

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Her injury was at the cervical level of her vertebrae, at C1-C2, which is at the top of the spine. This injury affected the left side of her body, which is weaker than her right, preventing her from being able to move on her own.

But growing up, Alyssa said her family was her rock and treated her the same as everyone else.

"My parents treated me like I didn't even have a disability," Alyssa explained, and said that she had friends and neighbors who were also very supportive of her.

wheel.life.in.the.wheel.world / Instagram
Alyssa Higgins, who lives with a spinal cord injury, announced that she is expecting a baby via an Instagram post.

When she met Jimmy on a dating site in 2013, Alyssa said she concealed her wheelchair in most of her profile pictures. And it wasn't until their first date that Jimmy learned of her condition. Still, it didn't deter him from falling in love with her.

"I liked her for just the conversation we had while getting to know each other," said Jimmy.

The two were engaged in 2017 and were married in 2019. Alyssa and Jimmy said they always wanted kids and were trying but weren't sure it would be in their future. According to the United Spinal Association, there is no evidence that shows that a spinal cord injury affects a woman's ability to conceive. However, there are many concerns that may come up such as the effects of pregnancy on women who have a disability.

Before she got pregnant, Alyssa said that she spoke to her doctor to see what her fertility future looked like. And when she was told it was possible to get pregnant, Alyssa said she and Jimmy started trying.

"We were trying, but for some reason I just wasn't expecting that to happen," said Jimmy.

"We weren't rushing, I just let it happen," added Alyssa.

While Alyssa was never told she couldn't have children, she pointed out that there were people who had doubts that she would be capable of carrying. But she was optimistic about it.

"I don't have any fears in general," said Alyssa. "I've been through so much that it's like, 'let's bring it.' There was no fear, I was excited."

Her message to other women who do have a spinal cord injury and are planning on having children is to talk to your doctor first and see if you can conceive.

"Just go for it and you never know," she said.

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Now, Higgins is documenting her pregnancy journey on her Instagram account, @wheel.life.in.the.wheel.world, where she answers any questions that her followers may have about her injury and also brings visibility to others with spinal cord injuries.

"Get to know the person -- don't ever judge someone by their cover. Don't look at the wheelchair, look at the person," said Higgins. "Don't look at the ventilator, look at the person because you could get to know the person so much better if you look past that."

Editor's note: This was originally published on Dec. 11, 2020.